An amazing evening raised $15,000 for Milestones for Maxwell to help pay for gene replacement therapy at University of Texas Southwestern Medical Center in Dallas, Texas for young Maxwell Freed.
As was reported recently in The Villager, $1 million is needed for the procedure to replace Maxwell’s DNA because he was born with such a rare disease it’s only known by the letters — SLC6A1, This is the gene that controls the gamma-aminobutyric acid that is the largest inhibitory neurotransmitter in the nervous system. It is also what is missing Maxwell’s genome.
Attending the Milestone for Maxwell event March 8 at Infinity Park Event Center, included members of the Colorado Avalanche hockey team, and Leah Block from The Bachelor, James Love, Canadian professional golfer, and NFL football player Justin Drescher.
Thus far, Milestone for Maxwell has raised approximately $300,000. For more information contact Amber Freed at Afreed@SLC6A1connect.org. Donations are accepted at milestonesformaxwell.org or at the GoFundMe pagegofundme.com/slc6a1-connect.
Maxwell’s parents Amber and Marc Freed.
Marc Moser, Colorado Avalanche announcer and master of ceremonies for the evening.
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